Well, it has been two months since Mr. Row was sent home from the hospital after his surgery and he is doing so well!
He has long since recovered from the actual procedure, you can barely even see his scar, now, so hidden is it by ever thickening blond hair. And his physical and occupational therapies are yielding great results. He sees each of his therapists once per week and they're surprised each time with the progress he's making week-to-week.
He is, of course, still markedly behind on developmental milestones like sitting, crawling, and grabbing toys/food, but he is gaining so much ground all the time.
I'd say our most significant change is in his ability to pay attention to what's going on around him. During his seizure days Row didn't seem to really "see" us. I mean, there was nothing wrong with his eyes, but he just seemed to look through us and be oblivious to things around him.
Now he is interested in so much. He loves looking at the graphic art and dark framed photos on the walls. Sunshine from the windows keeps him captivated. He's begun to like singing songs with Mommy and reading books with Daddy. But Row's favorite activity, by far, is BOUNCING in his little "Johnny Jump up" device. Once we load him in that puppy he will launch himself skyward and laugh like a mad man for an hour or more. Sometimes his laughs are so gasping and rough I worry he's choking, but no...it's just hilarious. Bouncing is hilarious!!!
It's just so incredible to see him filled with pure, unbridled delight.
When we were in the hospital the first time, without a diagnosis, just frightened and hearing horrible suppositions that would have meant leaving Row heavily handicapped or maybe even not surviving infancy. Remembering that fear and uncertainty while looking at him bouncing creates such a disconnect in my mind that I can...hardly...uh...find...erm....words...
Rowan is incredible. He works so hard every day to make up the skills he lost and to carry on learning new ones. He is full of cuddles, smiles, and laughs and he uses them to fill Mommy and Daddy with more joy and gratitude than they ever thought possible.
He is my amazing wee man.
